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Crohn's disease

Crohn's disease is a type of inflammatory bowel disease (IBD) that may affect any part of the gastrointestinal tract from mouth to anus. Other complications may occur outside the gastrointestinal tract and include anemia, skin rashes, arthritis, inflammation of the eye, and tiredness. The skin rashes may be due to infections as well as pyoderma gangrenosum or erythema nodosum. Bowel obstruction also commonly occurs and those with the disease are at greater risk of bowel cancer.

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-Make sure you can joke around with your doctor, otherwise things are bound to get awkward. -Know where all the bathrooms are located when you go out. Seriously, you’ll regret it if you don’t. -Never trust a fart; they are devious. -Have a short speech prepared for when people say, “What the heck is Crohn’s Disease?” -Everyone poops. They might not poop as much as you, but they still do it. -Don’t think of Remicade treatments as wasted time. Think of them as a chance to relax for a few hours. and most importantly... There is always someone out there who has it worse than you.

Contributed by Ali Dourlain

At the young age of 4, I was blessed with Crohn's Disease. Blessed, you say? Yes. I was blessed in many ways with the diagnosis. I met my hero of a doctor, Dr. Richard Sandler, and the amazing nurses that became my best friends my sophomore year of high school. From the ages of 5-12 I was in remission, always healthy and never sick. At the age of 13 however, my Crohn's came in full force. I was having flare ups every other month, which eventually led to me being diagnosed with Gastroparesis: The stomach becoming paralyzed. My colon had become inflamed so many times that it caused my pylorus to thicken, causing my stomach to become paralyzed. Thankfully after many NJ, NG, GJ, and now G tubes, I can happily say i'm in remission. PS Remicade is a God send. If any of you are living with Gastroparesis, Crohn's Disease, Ulcertive Colitis, or Dysautonomia in the Florida area, this is your guy: findaprovider.nemours.org

Contributed by Ali Dourlain

My Fight Like A Girl Club story about my journey with IBD.

Contributed by Heather Sherman

Me with my mom and brother at the CCFA's Take Steps for Crohn's and colitis Walk 2013 in Norwalk.

Contributed by Heather Sherman

Sign this petition to help increase awareness of and funding for Crohn's and colitis.

Contributed by Heather Sherman

Finally, someone can voice their frustrations!

Contributed by Rachel Bulko

Help solve the puzzle.

Contributed by Rachel Bulko

I was diagnosed last year, I have been to the hospital, one colonoscopy done, medical bills piling up, 5 flares since this year started, pain every week, this is what i have to live with. I don't think I will "get used to it" but I will try to live my life as normal as possible. What the doctor recommended called Humira costs about 2,800 dollars a month and I can't afford it, luckily I found a foundation that help people like me, uninsured, low income and with medicines as expensive as a house mortgage.

Contributed by Gladymar Rodriguez

This is what I have to live with, very serious

Contributed by Gladymar Rodriguez

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